Friday, April 18, 2008

It's almost Friday well actually it is.

I think my daily email from flickr to all the folks praying for you somes up what's going on currently. (See below)

Currently I have to say that I'm getting scared for you. I haven't been searching the internet too much. Mostly scared what I'll find.

Truth be told I'm already scared. I think the reality is starting to settle in form both your mama and myself. The reality that bad things could happen to our little girl. You're so tiny. And there seems like a million days between knowing you're coming home healthy and sound.

You sure do look tough in there. You stretch your legs and you move about and sometimes I forget that you're in danger. Somehow my brain just tells me you're small and you just need to go. I forget that each hour of the day your body is slowly adapting to this new world you're in and you just were not ready for it yet.

I'm praying in my heart that this medicine will do its job without hurting you. And then whatever comes next that you pull through unscathed. I'm being selfish in my heart because I want you to be perfect.

I want to see you do something I haven't been able to do - to make a difference in this world.

I'm careful when I say this because I believe sometimes the way God works - is you ask for something like that and it comes true, but not the way you invisioned. I'm not asking for him to help you inspire me to make a difference or for you to make a difference by simply pulling through and dealing with life long obstacles. I'm selfish and I'm asking for you to be a healthy little girl who grows up to be a healthy adult - who then goes out and makes a difference in people lives. I want to watch you be a better person that I could ever imagine to be. I want to talk to you and hold you and love you everyday. I want to teach you how special your life is, how lucky you are to be healthy and happy. And in the end I want you to spread that knowledge, life, and love in ways that only a loving heart can.

I'm asking for so much when I know that in the same room you sleep now are other babies working so hard to live just like you, and parents praying and asking for the same things as I am.

I don't know if I'm asking for too much, I don't know if I'm being just selfish and greedy - all I know is I dream of the strong woman you'll become. A person who'll make a difference in people's lives.

Evie Mali Mary
Life Flower Strength

Your name is everything I've imagined you to be.

I love you sweetheart, I know you're doing your best for your daddy and mama.


Flickr Email:

"Tomorrow marks week 25 and day 6 of Evie beingout in the big world.Today they started her on medicine to close her heart valve - this will prevent a host of other problems. Her current condition is called PDA. Her first dose was given at 3pm her next will be at 3am and then another at 3pm on friday.
I'm told that premature babies have a grace period and then things will get complicated. She'll have scary bad days and stable good days.
So far with your prayers she is doing very well.
She weighs about 1 pound 4 ounces. Her chest/throat should be clearing up - but the new medicine for her hear valve could introduce new problems. Likely related to the kidneys. They'll monitor carefully and on saturday they will do a heart scan to see if the medicine will work. From there depending on her body's reaction she made get another dose if nothing has changed or an operation to close the valve with a pin.
Your thoughts and prayers are needed and welcomed.
Thank you all.
A few new pics of Evie stretching her legs have been added.-jer"

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